I have CFS or ME call it what you will it’s still shit and 60% of the population believe your making it up. My boss is one of them. I have been hauled into her office and yelled at for being ill, it’s not as if I choose to be ill and I’m not having a party when I’m off I’m sleeping all day and all night to try and get something resembling energy.
At the moment I’ve been off sick for 3 weeks with a flare up. I’ve not had a serious flare up since 2005 when we moved house. This one just came out of left field and hit me…hard. I have no energy and I’m in massive amounts of pain. I’m also losing the ability to type and write (not good when you work in a school). I’ve just been signed off until after Easter. I can fully admit that normally I’d have gone back next week but since I’ve been put working 1:1 with a devil child which involves me running around after him, physically restraining him and being kicked, hit, bitten and generally abused I know I don’t have the energy for a full morning of that and a full afternoon of intervention groups or whole class teaching. I think I’d make it until playtime before I collapsed in a heap.
I posted my sick not straight from the doctors yesterday and I also enclosed an NHS info sheet about CFS and work and another one about what CFS is. Hopefully the boss will read these or at least look over them and be slightly more sympathetic when I go back. I doubt it very much but I can hope.
I’m sure when I go back she will make out that I’m incapable of doing my job which is bullshit as I can do the job I applied for HLTA. I can do classroom support and interventions no problem, however having a physically and mentally draining morning with a child who doesn’t want to be at school and will do anything to show that is not helping matters and I can’t do that. I know I’m good with SEN and I know I can calm him and make him easier to work with for everyone else but it’s destroying my health and I need to make sure that I’m alright first. I love my job but it’s no good if thats all there is to my life, thats not a life thats slavery and thats how I feel sometimes. Having CFS and holding down a full time job is a game of sacrifices. You have to chose which part of your life to give up, your job and financial security or your life outside work. I chose to give up my life. If I socialize at the weekend I’m exhausted for a week after. Going to bed past 10 on weeknights and most weekend is also virtually unknown (I’m only awake now as I’ve been in bed all day and am suffering insomnia so can’t sleep at all) I find it hard when I’m being made to feel guilty and told I’m not committed to my job when I’ve given up having a life outside work to make sure I’m there as often as I can be.
I guess I need to make sure I’m up to date with the union just in case I need them to help me fight a battle. Luckily the occupational health team at the council are fab and really supportive so I might see about booking an appointment with them before I go back to get them on my side. I know last time I mentioned to my boss that I’d discussed issues with Occ health she was massively panicked so that might be the way forward and also refusing to have a meeting with her without the union present.
Well at least I have a plan!